Schaaf-Yang Syndrome Research
CSFA Number: 482-00-2282
Agency Name
Department Of Public Health (482)
Agency Contact
Rebecca Barnett
Short Description
Conduct Schaaf-Yang Syndrome research to develop and advance the understanding, techniques, and modalities effective in early detection, prevention, cure, screening, and treatment of Schaaf-Yang Syndrome. May include clinical trials.
Subject Area
Program Function
Enabling Legislation
Newborn Metabolic Screening Act [410 ILCS 240]
Objectives and Goals
Conduct Schaaf-Yang Syndrome research to develop and advance the understanding, techniques, and modalities effective in early detection, prevention, cure, screening, and treatment of Schaaf-Yang Syndrome. May include clinical trials.
Types of Assistance
Formula Grants
Uses and Restrictions
Conduct Schaaf-Yang Syndrome research to develop and advance the understanding, techniques, and modalities effective in early detection, prevention, cure, screening, and treatment of Schaaf-Yang Syndrome. May include clinical trials.

Unallowable or prohibited uses of grant funds include, but are not limited to the following:
• Political or religious purposes
• Contributions or donations
• Incentives
• Fundraising or legislative lobbying expenses
• Payment of bad or non-program related debts, fines or penalties
• Contribution to a contingency fund or provision for unforeseen events
• Entertainment, food, alcoholic beverages and gratuities
• Membership fees
• Interest or financial payments, or other fines or penalties
• Purchase or improvement of land or purchase, improvement or construction of a building
• Lease of facility space
• Equipment in excess of 5 percent of the grant award
• Expenditures that may create conflict of interest or the perception of impropriety
• Audit expenses
• Prescription drugs
• Conference registration fees, including registration fees to attend or exhibit at events that can be defined as fundraisers
• Exhibit fees of any kind
• Subscription costs
• Association dues
• Expenses for credentialing (e.g., CHES certification)
• Airfare
• Out of state travel costs
Eligibility Requirements
Grant awards are available only to Illinois researchers. Recipients of funds must be institutions and not individuals. Research may be provided by an individual(s) under the authority of an institution. Grant awards are available to students, residents and fellows. Applicants should submit proposals with a work plan and budget designed to be completed by June 30, 2020.

The grantee may apply for this grant but will not be eligible for a grant award until they are pre-qualified through the Grant Accountability and Transparency Act (GATA) Grantee portal, During pre-qualification, Dun and Bradstreet verifications are performed including a check of Debarred and Suspended status and good standing with the Secretary of State. The pre-qualification process also includes a financial and administrative risk assessment utilizing an Internal Controls Questionnaire. If applicable, the entity will be notified that it is ineligible for award as a result of the Dun and Bradstreet verification. The entity will be informed of corrective action needed to become eligible for a grant award.

Eligible applicants must meet one of the following criteria:

1. A physician licensed in Illinois to practice medicine in all of its branches;
2. A licensed hospital in Illinois;
3. A certified/accredited laboratory in Illinois;
4. A researcher at a post-secondary higher educational institution in Illinois; or
5. A health care professional (includes, but is not limited to, licensed health care professionals [e.g. nurses, therapists, social workers etc.], Ph.D.'s, biologists, psychologists, gerontologists, economists, and behaviorists.
Eligible Applicants
Government Organizations; Education Organizations; Nonprofit Organizations;
Application and Award Processing
Applications must be submitted via the Illinois Department of Public Health's Electronic Grants Administration and Management System (EGrAMS), accessible at

This work will occur during an approximate six-month grant period (upon grant execution through June 30, 2020). The applicant must submit a project plan that describes how the award will be executed. The project plan should include necessary detail to enable the agency to manage the grant agreement activity against planned project performance.

Applications must be received by the close of business (5:00 p.m.) on November 14, 2019. If the applicant encounters technical difficulties with the EGrAMS system, the applicant may contact: Rebecca Barnett at or 217-782-1227 or IDPH Grants Support E-mail:

Applications will be reviewed for content, work plan activities, budget proposals and required application supplemental material. Reviews will also be based on adherence to prior grant guidelines, timely submission of reports and fiscal monitoring.

This grant is competitive. Upon receipt, the Department conducts an internal review of each application. Applications not received by the designated deadline, or not having all components listed in these Guidelines, will not be eligible for review and will not receive further consideration during this funding cycle.

After successful internal review, the Genetic and Metabolic Diseases Advisory Committee conducts a technical review and makes funding recommendations to the Department. Based on the consolidated score, the applicant is placed in one of three categories: Recommended for Funding, Recommended with Revisions and Declined.

- Abstract - 5 pts
- Research Plan - 65 pts
- Budget Summary, Justification and Use of Funds - 25 pts
- Literature Cited - 5 pts

Merit-Based Review Appeal Process
• For competitive grants, only the evaluation process is subject to appeal. Evaluation scores may not be contested.
• To submit an appeal, the appealing party must:
o Submit the appeal in writing and in accordance with the grant application document through IDPH's Merit-Based Review Appeal Request Form available on the IDPH website under the GATA section.
o Ensure the appeal is received within 14 calendar days after the date that the grant award notice was published.
o Include the following information in the appeal:
? The name and address of the appealing party
? Identification of the grant
? A statement of reasons for the appeal
? If applicable, documents or exhibits to support statement of reason
• The IDPH Appeals Review Officer (ARO) will consider the grant-related appeals and make a recommendation to the appropriate Deputy Director as expeditiously as possible after receiving all relevant, requested information.
o When an appeal is received, the ARO and the respective office's Deputy Director will be notified.
o The ARO must review the submitted IDPH Merit-Based Review Appeal Request Form for completeness and acknowledge receipt of the appeal within 14 calendar days from the date the appeal was received.
o The Appeal Review Tool is used to consider the integrity of the competitive grant process and the impact of the recommendation.
o The appealing party must supply any additional information requested by the agency within the time-period set in the request.
o The ARO shall respond to the appeal within 60 days or else supply a written explanation to the appealing party as to why additional time is required.
• The execution of the grant agreement(s) may be stayed until the appeal is resolved. If the grant program requires moving forward with the grant execution process, the grant-making office must submit a written rationale to the ARO.
• Documentation of the appeal determination shall be sent to the appealing party and must include the following:
o Standard description of the appeal review process and criteria
o Review of the appeal
o Appeal determination
o Rationale for the determination
• In addition to providing the written determination, the grant-making office may do the following:
o Document improvements to the evaluation process given the findings and re-review all submitted applications.
o Document improvements to the evaluation process given the findings and implement improvements into the following year's grant evaluation process.
o Provide written notice to the appealing party as to how the identified actions will be remedied.
Appeals resolutions may be deferred pending a judicial or administrative determination when actions concerning the appeal have commenced in a court of administrative body.
Assistance Consideration
Cost sharing is not required.

The applicant may voluntarily identify indirect costs as a programmatic match, or as in-kind, in order to allocate the entire grant for direct costs.
Post Assistance Requirements
Grantees are required to submit progress reports on their work plan objectives.

Failure to submit required reports in a timely manner will result in delays with approval of
reimbursements. For the grant period, grantees will ensure progress reports are
submitted in the required format as follows:

1st Progress Report Due By: April 30, 2020
2nd Progress Report Due By: July 31, 2020
Regulations, Guidelines, Literature
Funding By Fiscal Year
FY 2020 : $300,000
Federal Funding
Notice of Funding Opportunities
Agency IDAward RangeApplication Range
DetailsNANot Applicable10/23/2019 - 11/25/2019 : 5:00 pm
Agency IDGrantee NameStart DateEnd DateAmount
03788603HBoard of Trustees of Southern Illinois University, School of Medicine02/01/202006/30/2020299,969